Showing posts with label leukemia. Show all posts
Showing posts with label leukemia. Show all posts

Tuesday, June 14

Home!

We went straight from the hospital to the backyard!
And we added a pink "faux-hawk" to celebrate Toucie's growing hair.
I guess this is the expression that people with mohawks are supposed to wear.
















sprinkler + trampoline = big fun
















...um yeah...she's feeling better...i told her her face might "stick" this way!

Wednesday, June 8

In the hospital again....

in the Emergency Room
















our team works hard to help her feel better as quickly as possible
















but we will have to stay in the hospital for several days
and find ways to stay happy and busy





















we try to make Toucie's room as lovely, comforting, & warm
as possible





















we bring bed linens, toys, and supplies from home
and make decorations to brighten the room





















what to do while we wait to be released?
a little painting...
















...a little playing...
















...a little dancing...





















...a little crafting...





















...a little waterplay...
(there are dolls having a pool party in that sink!)





















...a little movement...





















...and a little silliness....

Saturday, March 5

An interesting sort of canvas for a new kind of art....

"good guy" on the front






















"bad guy" on the back

















fancy























wearing Grammy's wig!























"she's got the whole world on her head" (??!!)






















sometimes she paints by herself

















sometimes she allows guest painters






















avant-garde






















doesn't even know who "the avatar" is, but she looks
like an "air-bender"!



She's a beauty!

Sunday, September 5

Toucie's update

















The word "meds" is a an everyday part of Toucie's vocabulary nowadays. We get really sick and tired of meds, because sometimes there are alot of them to take.






















And sometimes they have side effects that we don't love. Like low energy and lethargy.


And grumpiness.

















And roly-polyness (isn't that a word?)

 

(Look at those cheeks!)

These things have been things we can handle. Things we can work through. Things we can live with. And things that will pass. I am grateful that there is very little suffering for my girl, so far, in her treatment. 

There is another side effect that we are anticipating and we are gearing up to accept it with as much grace as possible. The loss of all those shiny, maple-brown tresses. We are starting with a haircut.

(A lollipop softens the experience)

Toucie has not yet begun to lose any hair, but if she should, we will be prepared to go back for an even shorter cropping and eventually a full buzz-cut.

Meanwhile, she is going with the flow and the rest of us are just trying to keep up!